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法洛四联症术后患儿家庭照顾随访需求的调查 被引量:2

Investigation on Needs of Family Care for Children with Congenital Heart Disease after Tetralogy of Fallot Surgery
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摘要 目的调查法洛四联症术后患儿家庭照顾的需求,为探讨实施法洛四联症家庭照顾的长期随访和护理干预提供依据。方法采用方便取样法选取100名法洛四联症手术后1年患儿家庭进行问卷调查,了解患儿家庭对于生理、心理与社会、照护品质及讯息四个方面的需求。结果被调查家庭对照顾需求问卷的四个项目中,生理需求排列第1位,而心理与社会需求排列第4位。外省市家庭需求高于上海本市家庭,文化程度不同对家庭照顾的需求程度也存在差异。而对于不同年龄组患儿在单独分析需求条目时生理层面需求差异有统计学意义,但在需求总分上差异无统计学意义。结论复杂的先天性心脏病患儿术后康复中,其家庭照顾的提供者有多层面的需求,需要专业人员继续提供相应的随访及干预措施。 Objective To investigate the needs of family care for postoperative children with tetralogy of Fallot(TOF) so as to explore the evidence of an implementation on a long term follow-up and nursing intervention for family care.Methods A descriptive survey has been conducted to identify the needs of family care in four aspects,such as physiology,psychology and society,quality of care and information.We utilized the convenience sampling to select 100 families with postoperative TOF children to complete the questionnaire.Results Among the four aspects of family needs,physiology ranked the first.However,psychology and society was the last to be considered.The migrant families had higher score on the needs of family care than the native ones.There were differences between the family members with higher educational background and those with lower one.Different age groups have the statistic differences on physiology,but there was no difference on the total score.Conclusion Family members of children with complex congenital cardiac disease have multifaceted needs during the whole recovery process.Nurses should deliver different and lognitadinal nursing interventions to different families.
出处 《解放军护理杂志》 2011年第10期1-3,共3页 Nursing Journal of Chinese People's Liberation Army
基金 上海交通大学医学院科研基金资助(Jhy0804)
关键词 法洛四联症手术 家庭照顾 随访干预体系 需求 tetralogy of Fallot surgery family care follow-up and intervention system need
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