摘要
目的探讨以家庭为中心的护理干预对原发性肾病综合征(PNS)患儿治疗依从性及生活质量的影响。方法将2017年4月—2018年6月南京医科大学附属儿童医院肾病科102例PNS患儿按照入院顺序采用随机数字表法分为观察组和对照组,每组51例,对照组实施常规治疗与护理,观察组在此基础上实施以家庭为中心的护理干预,随访时间为6个月,包括家庭教育和家庭访视。采用少儿主观生活质量问卷(ISLQ)评价儿童生活质量,并对比两组患儿入组时、出院6个月后的治疗效果与治疗依从性。结果出院6个月后,观察组治疗总有效率为92.16%,对照组为78.43%,两组比较差异有统计学意义(P<0.05)。观察组出院复发率(3.92%)明显低于对照组(23.53%),差异有统计学意义(P<0.05)。观察组的治疗依从性(96.08%)高于对照组(84.31%),差异有统计学意义(P<0.05)。出院6个月后,两组患儿的生活质量得分均有明显改善,且观察组得分高于对照组,差异均有统计学意义(P<0.01)。结论将基于家庭为中心的护理干预模式运用到PNS患儿护理中有利于指导家长向患儿提供有效的家庭支持,促进患儿治疗的依从性,提高患儿生活质量,改善疾病预后。
Objective To explore the effect of family-centered nursing intervention on treatment compliance and quality of life in children with primary nephrotic syndrome(PNS).Methods According to the admission order,a total of 102 PNS children in Department of Nephrology in Children's Hospital of Nanjing Medical University from April 2017 to June 2018 were divided into the observation group and control group by the random number table method,with 51 cases in each group.The control group was given routine treatment and nursing.On the basis of this,the observation group was given family-centered nursing intervention.The follow-up period was 6 months,including family education and family visits.Inventory of Subjective Life Quality(ISLQ)was used to evaluate quality of life of children.And the treatment effect and treatment compliance of children at the time of admission and 6 months after discharge were compared between the two groups.Results Six months after discharge,the total effective rate of treatment in the observation group was 92.16%,and that in the control group was 78.43%,the difference between the two groups was statistically significant(P<0.05).The recurrence rate after discharge of the observation group(3.92%)was significantly lower than that of the control group(23.53%),and the difference was statistically significant(P<0.05).The treatment compliance of the observation group(96.08%)was higher than that of the control group(84.31%),and the difference was statistically significant(P<0.05).Six months after discharge,ISLQ score of children in the two groups improved significantly,and the observation group was significantly higher than the control group,the difference was statistically significant(P<0.01).Conclusions The application of family-centered nursing intervention mode in care of children with PNS is helpful to guide parents to provide effective family support to children,promote the treatment compliance of the children,improve quality of life of children and improve the prognosis of the disease.
作者
吕晴晴
杨文静
Lyu Qingqing;Yang Wenjing(Department of Nephrology,Children's Hospital of Nanjing Medical University,Nanjing 210000,China)
出处
《中华现代护理杂志》
2020年第16期2212-2215,共4页
Chinese Journal of Modern Nursing
关键词
儿童
原发性肾病
家庭支持
护理干预
治疗依从性
生活质量
Child
Primary nephropathy
Family support
Nursing intervention
Treatment compliance
Quality of life
