摘要
目的 了解头颈部肿瘤患者自我管理的真实体验,为构建有效的自我管理干预方案提供参考。方法 采用描述性质性研究方法,基于健康行为改变整合理论及相关文献、专家咨询制订半结构式访谈提纲,对15例头颈部肿瘤住院患者进行深度访谈,采用定向内容分析法剖析提炼主题。结果 共归纳出3个主题9个亚主题,即健康知识和信念(疾病相关知识缺乏、自我管理认知不全面、自我效能感存在差异),自我调节技能和能力(症状和毒副作用管理、负面情绪调节能力、工作及日常生活管理),社会支持需求(医护人员的支持需求、亲友支持需求、经济支持需求)。结论 头颈部肿瘤患者的自我管理行为障碍因素较为复杂,护理人员可基于患者需求,通过加强自我管理知识教育、自我管理技能培训及调动社会支持系统,从而帮助患者提高自我管理能力。
Objective To understand the real self-management experiences in patients with head and neck neoplasia,and to provide a reference for constructing an effective self-management intervention programme.Methods A descriptive qualitative study was designed,a semi-structured interview outline was developed based on the Integrated Theory of Health Behavior Change,literature review and expert consultation.Then in-depth interviews with 15 patients with head and neck neoplasia were conducted.Directed content analysis was used to dissect and refine themes.Results Three themes and 9 sub-themes were summarized:health knowledge and beliefs(lack of disease-related knowledge,incomplete self-management perceptions,and variations in self-efficacy),self-regulation skills and competencies(symptom and toxicity management,negative emotion regulation ability,and management of work and daily life),and social support needs(healthcare worker support needs,family and friend support and needs,and financial support needs).Conclusion The barriers to self-management behaviour in patients with head and neck neoplasia are complex.Nursing personnel can help patients to improve their self-management ability based on patients′ needs through strengthening self-management knowledge education,self-management skill training and mobilizing the social support system.
作者
杨婷
郑晓丹
傅茂菱
黄靓颍
谢航博
陈思忆
华子衿
Yang Ting;Zheng Xiaodan;Fu Maoling;Huang Liangying;Xie Hangbo;Chen Siyi;Hua Zijin(Stomatological Center,Union Hospital,Tongji Medical College of Huazhong University of Science and Technology,Wuhan 430022,China)
出处
《护理学杂志》
北大核心
2025年第3期46-49,共4页
Journal of Nursing Science
基金
华中科技大学同济医学院护理学院2022年度研究生教学改革研究项目(HLYJ202203)。
关键词
头颈部肿瘤
自我管理
健康行为
健康信念
自我效能
自我调节
社会支持
质性研究
head and neck neoplasia
self-management
health behaviour
health belief
self-efficacy
self-regulation
social support
qualitative study
